Yesterday I got to the hospital just after 5pm and mom was still out, as in sleeping. JJ had to leave at 3:30 and dad was alone. I hate leaving dad alone at the hospital. It's really bothering him when he can't figure out what she wants and it looked like maybe she had been trying to tell him something and she got mad when he didn't know what it was. It's a hard thing. I can only compare it to having a baby and not being able to comfort them. You just try and try one thing after another and hope that one of those things you try will give them comfort. Are you in pain? Do you have to use the bathroom? Are you hot? Are you cold? Do you want your blanket? Do you want an ice pack? Do you want a pillow under your legs? Do you want the music off? I don't have to think so hard about the questions anymore. I told him, "Just wait 'til she gets her energy and strength back and can really get mad at us."
And it wasn't just dad. He said that when the speech therapist came in, she refused to work with her and even started crying. But when another therapist came in (can't remember if it was occupational or respiratory) she was good to go. She wasn't full force on the OT, and didn't have the energy to stand up, but she sat on the side of her bed to do some excersises.
Oh yeah, in yesterday's post I forgot to mention that the results of the lab on her PEG incision came back negative. All of the labs and tests done to find the root cause of her stomach issues have (so far) been negative. In a way, it's a good thing. It means she doesn't have an infection. But it also means, we don't know the reason :(
Last night mom had another fever. Nurse Shelly said that they hadn't given her percocet as they were trying to "test" to see if the Tylenol was working on her headache (percocet contains Tylenol). It appears to be, so they administered some to her and her fever did break. She slept until about 5am when she had to use the bathroom. She came out in pain (but it didn't seem like the same stomach pain she was having before) and it was time for her to get some more medication, so they gave her some. She fell asleep pretty quickly, but looked tense. I left at 6:30 this morning and she felt a bit clammy. Dad said her last stat check at 8am came back with a slight fever, about 99, but he also said she seems to be resting more comfortable.
Dad told me that a few doctors had already come by. The neurologist checked her reflexes and said they were looking good. The pulmonologist said that he had spoke to her hospitalist (Dr. Halmark) and that they have decided to do a bronchoscopy. That is scheduled for 3pm today. He had to sign a consent form because they will be using anesthesia, but it's not considered a surgery so the fevers should not affect it. The hope is that they will be able to find out if there is an obstruction, but they can possibly get a biopsy as well.
Please pray for a good day.
xox,
Tommy
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